A new charitable trust has been launched in memory of a local man and brother whose life was tragically cut short by illness.
Trust 22 is a charitable cause set up in honour of Thorne man, Andrew Lake, who sadly passed away last year aged just 27-years-old. The trust has been set up by Andrew’s sister, Amie Knott, with the help of family and friends.
The cause is now looking to add to fundraising already done by Amie in honour of her brother, whilst also campaigning for a change in the law surrounding organ donation in England. The trust would like to see an ‘opt-out’ system for organ donation, as it already is in Wales.
Andrew spent a lot of his life in hospital, having been diagnosed at 10-years-old with Fanconi Anaemia, a rare genetic disorder which can result in bone marrow failure and an increased susceptibility of developing head and neck cancers.
There is no known cure for Fanconi Anaemia and life expectancy is low.
In 2013 it was then discovered that Andrew had developed Bronchiolitis Obliterans Syndrome, a rare lung disease which results in obstructed airways due to inflammation and scarring of the tissue.
Unfortunately Andrew failed to get a lung transplant that would have extended his life and in November 2016 he sadly passed away, leaving his sister, Amie, to continue his legacy.
Amie has already raised thousands of pounds through her own fundraising over past years; helping maintain the register of Fanconi Anaemia patients in the UK, and also supporting the Sheffield Palliative Care Unit who cared for Andrew in the weeks leading up to his passing.
With the formation of the new trust, she aims to continue with fundraising and campaigning in her brother’s memory.
Amie said: ”I set up Trust 22 in honour of my brother as a means of helping others realise their fundraising goals in his name whilst continuing my own fundraising and campaigning.
“Before Andrew passed he made sure he had given me a mammoth list of things to achieve for him.
“He told me that I needed to continue his dream and so, through Trust 22, I aim to do just that”.
Trust 22 will also make grants available to people and organisations within the local community who need assistance with funding for care and medical equipment to help with illness.
“Any donations we receive will go straight back into the community”, added Amie.
One of the trust’s first events will be ‘Lakey’s Memory Walk’ on Sunday 10 September. The sponsored walk will take place over 15 miles, taking in motorcross tracks at Finningly and Armthorpe where keen biker Andrew raced, before finishing in Thorne.